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please help [11 May 2009|04:10pm]

orange_freeze7
I lost both my parents almost 5 years ago to cancer, and I am now engaged, but I have no one to help me pay for the wedding, so we are going to have to save up for years and years to be able to get married the way we would like. I am in a contest in St. Louis to win a free wedding. If you could all just go online and vote, it only takes 5 minutes and it would mean the world to my fiance and I. Please feel free to read our story and pass it along.

Here is the link to our story: http://www.loufuszgiveaway.com/Details.aspx?wid=127

Here is the link to register to vote: www.loufuszgiveaway.com

Thank you for your time.

Amanda
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I'm new her [19 Aug 2008|05:54am]

silence_heart
[ mood | confused ]

Hi there,
I'm 26 years old female, married since about 3 years. I have a small baby boy. He is now 2 years and 8 months.
I got married after a wonderful love story. My husband is 27 years old. He is really a very great person. He has a great heart and mind.

We had a great life with regular life with some prob. and many great days. The shoked was when he diagnosed 5 months ago with Hodgkin's Lymphoma stage IV A. After that day all our life was changed. He changed too much. He became careless with his health. He refused to know anything new about his desease. He left evry thing to me. He didn't want to know anything new about his case, even the improvement!

I'm really tired and I don't know how to deal with him? How not to showing him my pain or heart proken? How to deal with evry body else careless! how to become strong to support him and my self? How to make him strong in the time that he was the one in the past who support me and gave to me all the strenth I was having!

I hope that I will find the support and information exchange over here so I can help him more epecially after he had a lung failure because of the ABVD ( the beliomycin hurt his lung and they stopped it). We are now in cycle 5 day 15 on next saturday. He became a little bit week with shorten breathing after any small effort.

If any of you over here have a similar situation I hope we can help each other.

10 angels be supportive

[11 Mar 2008|06:29am]

phr00tsnax
be supportive

[17 Jan 2008|02:03pm]

ch4ng1ng_r1v3r
[ mood | curious ]

Hi! It's me again!

My husband was officially diagnosed with Stage II B Hodgkins Lymphoma/ It's questionable about what subtype he has.

Originally his oncologist said that he was going to do the standard ABVD Chemotherapy. Once every two weeks.

Then the oncologist decided that the other subtype it could be was potentially too dangerous to allow a two week regime, so he's decided to do chemo once a week. And instead of doing chemo for six months, he'll only have to do it for three.

I'm wondering what the expect with all of this. I know nausea, hair loss, and what not. But I'm wondering if we need to be extra extra careful about illnesses and how to do this. He's a student at university right now. Luckily he's only going to two traditional classes, but still wondering if you guys have any suggestions for avoiding illness.

I'm also wondering if it's... normal... to not want to know anything about your disease besides the basics the doctor tells you and not really caring about what exactly treatment does. My husband is kind of avoiding everything to do with his cancer and the only way he really knows what he knows is because his dad and I keep harassing him with things we have learned.

Also, what's the best way to deal with relatives when it comes to this? We've told his mom and she's kinda... crazy. I mean, in a controlling way. Just wondering what a good way to get her to sit down and understand the extra stress she's causing my husband is bad...

Hm... I guess that's all of my questions for now.

Thanks, everyone, for your answers to my last post. :) Thanks to them, my husband was relieved when his doctor advised having a port installed. He looks forward to having the easier chemo.

4 angels be supportive

Hello, all. [08 Dec 2007|11:59pm]

ch4ng1ng_r1v3r
[ mood | curious ]

Hi! My name is Leah and my husband was just diagnosed with Hodgkin Lymphoma.

He's going in to the doctor on Monday to go through all those fun tests to decide what stage he's at and I have a couple of questions I hope you guys can help answer.

1) Are the tests painful? He's supposed to go to work that night, and he really doesn't want to call off, so I'm wondering if the bone marrow biopsy will hurt him a lot.

2) He's expected to go through chemo at least, what can we except? He as the patient and myself as the care giver.

3) Are there any certain foods that you would suggest for days when he goes through chemo?

4) Is there anything that we should know about that we probably will never think to ask anyone?

Thanks for your guys' help. I'm sorry if I ask silly questions. I'm really nervous and scared about this.

---Leah

10 angels be supportive

The Healer [13 Oct 2007|08:51pm]

geoffbrown
My partner Travis died 13 and a half months ago from Sezary Syndrome, a rare form of leukemic lymphoma. Some of you have probably seen a couple of my posts in the past. I still miss Trav every day but the intense pain of the first months after his death has subsided. All of our experiences are different. For me, time has been The Healer. My life will never be the same for having loved Trav through his illness and I wouldn't have it any other way. When I remember our life together I remember the good, the bad, and the ugly and there was some of each--it was rich and has added a dimension to me that would not exist otherwise.

Grief is an interesting thing. There is really no way around it even if we avoid it for a time to give ourselves a break. It is always there waiting for us to grapple with. If you have found yourself in my shoes or should you in the future I would say if you avoid grief to give yourself a break .... that's okay, but don't fear it. Embrace the journey with grief as your partner for a time. As we embrace it, walk with it, breathe it, taste it, smell it .... grief will slowly begin to lose it's grip and power over us.

Those of you battling lymphoma or have a loved one battling, know that my heart and spirit are with you. Have courage and take heart. Share your stories to inspire and lift each other up. You will be strengthened.
1 angel be supportive

New to this Community [27 Sep 2007|03:13pm]

drohrer
Hello everyone; I am new to this community. I regularly belong to PHypertension community as my husband has Pulmonary Hypertension and I was looking for others to vent/share experiences with. But recently, my uncle was diagnosed with mantle cell lymphoma. I am very scared about this because all of the literature points to a very NASTY, almost hopeless form of lymphatic cancer. I guess I was wondering if anyone here has had/has this form of cancer or has had/has a non-hodgkin's type lymphoma and how they are doing, or if they have any suggestions for families and things. Thanks so much! I really appreciate your time!!
1 angel be supportive

Armstrong to Hold Cancer Forums in Iowa [21 Jul 2007|02:48am]
mrsfruitcat
Lance Armstrong is pushing his cancer fight into presidential politics. The cancer survivor, activist and seven-time winner of the Tour de France announced he will hold presidential candidate forums on cancer next month in Cedar Rapids, Iowa.

"For me personally, it's just to make sure that whatever candidates we have now, and then ultimately the two who want to be president, discuss the No. 1 killer in this country, just like they would discuss war or terror or taxes," Armstrong said in a video statement on his foundation Web site.

"I think whoever wants to be commander in chief ought to answer the cancer question," Armstrong said.

The forums are scheduled for Aug. 27 for Democrats with the Republicans the next day.

http://apnews.myway.com//article/20070720/D8QGIMEG1.html

------------------------------------------------------------

What do you guys think of this? I think this is a really good idea. I want to hear what the candidates have to say about cancer and how they plan on funding programs that fight cancer.
be supportive

[13 Jul 2007|02:36pm]

coendou
Dear Fellow Survivors,

I am a Hodgkin's Lymphoma survivor, diagnosed in January 2004 and in complete remission since September of 2004. I've been tossing around some ideas for ways to help chemo patients, and right now I'm conducting a survey to look into some particular needs. I'd really appreciate it if anyone who is currently or ever has received chemotherapy could take a minute to take this survey:

http://www.geocities.com/porcupine88/survey.html

It will ask you about your chemo experiences as well as video games - please take it even if you don't play video games, your input is still very valuable!

x-posted to cancersurvivors
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xposted to cancersurvivors and cancersupport. [18 Jun 2007|11:49pm]

phr00tsnax
[ mood | aggravated ]

Sooo.. I'm a Hodgkin's Lymphoma survivor (since Sept. 6, 2006). I used a crapload of meds during my chemo and I also have poly-cystic ovarian syndrome. During chemo, I gained almost 40lbs.. which is insane because I could barely eat the entire time. Even worse, I haven't been able to lose a single pound since the end of my treatments no matter how much I exercise. Fyi.. I was on the Nuvaring and used Lupron shots during chemo.

Does anyone have any experience with weight gain during chemo and have any suggestions?? It's just so miserable to still not feel like myself so many months after I finished my treatments.

2 angels be supportive

brain tumor and lymphoma benefit [01 Jun 2007|04:25am]

orange_freeze7
Photo Sharing and Video Hosting at Photobucket

please contact me if you have any questions, if you would like tickets or if you have any pictures you would like to donate to the slideshow i am creating for the event...

thanks.
amanda
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xposted to cancersupport [14 Dec 2006|12:55pm]

phr00tsnax
[ mood | awake ]

So, this is a little dumb but I just found a poem I wrote a couple days before my first chemo treatment on March 17th. Figured someone out there might like it.



"C"

by Elizabeth Verni 3/14/06



C

Can't say it
Crisp and harsh
Ca- Ca-
Like candy
or carousel
But not as nice
or fun
Ca-
Like canadian
but not as friendly
but always over you like
a
big
looming
country
Ca-
Can't talk about it
or else the tears
D
R
I
P
Not from your eyes
but others
Big, wet, soul-hurt tears

BUT:

Ca-
Can do it
Can beat it
CAN BE STRONG!

Can wear the C like
a badge of hope
Like a beacon of light
Like a trophy

A trophy to signify pain
yet brilliance.

The C word:
Not nearly as evil
as it may seem.
7 angels be supportive

satellite618 [28 Oct 2006|12:18am]

julieannie
First, so you all know I am a member of this community for a reason. I had lymphoma and I've been chemo-free for about 10 months now. 

http://community.livejournal.com/lymphoma_peeps/33837.html

Some of you may have seen this post . I was upset by it but others quickly realized suspicious things were going on with Brittany's supposed nurse, magikalmooshu. As you can see, that LJ is now deleted. fake_lj_deaths has researched this and discovered Britney is not dead. She has been communicating with family members and has been out partying since her "death" on Friday the 13th. She also has no death certificate on file at the courthouse which is required before donating her body to science as her friend claimed she was.

I'm sorry to those of you who fell victim to this. It upsets me that our community was exploited in this way. If you have questions on the details, I will do my best to help answer them despite the community being locked. I don't know if satellite618 actually had cancer or not but I do know she is alive.

Cross-posted to cancersupport
7 angels be supportive

[13 Oct 2006|11:19am]

tsmmusicman
Hey everyone

Hopefully this won’t come across as advertising, but I was invited to beta test this site you all might want to check out. It’s called www.lovehealz.com and is basically a mix between Myspace and eHarmony specifically for people with lymphoma and other illnesses. They said they are going to be donating millions of dollars to charities like the American Cancer Society and the Leukemia & Lymphoma Society! That’s really why I wanted to post here.

It seems like they’re supporting a really great cause and could really use some additional opinions to make it work.


Here’s the beta code to sign up: RFBETA06
Hope to see you there!

-Jason
1 angel be supportive

[07 Oct 2006|05:23pm]

geoffbrown
I wish this community were used more. I think it could be a great resource of strength to those who are battling some for of lymphoma. While I knew it was highly unlikely that Travis would recover from the kind of lymphoma he had, I still was able to find some strength and hope in the words written by others in the community and their words to me offered comfort. Even though Travis is no longer with me, I'll return to read the words and write some of my own thoughts for those of us who are here. I am constantly encouraged by those of you who fight the battle everyday--the most obvious being the battle with the disease, but the most obvious is not necessarily the most meaningful or important. There are so many other battles that you face as a result. The battle for hope, the battle for finding purpose, the battle for building meaningful and flourishing relationsips, the battle to live in the present .... I know the list could go on a lot longer and those of you struggling with this disease can inform me of those battles that you face each and everyday. I suppose that all of us, ill or not, should seek to find all of these as well; but most of us don't look for these things until we're staring at our mortality--sad but true I think. The lessons I've learned are invaluable and have given me hope and strength beyond what I would have ever attained without walking day in and day out with Travis. My prayer is that no matter where you are in your illness that you find the blessings that are there waiting--there are many!
be supportive

The Final Dance [14 Sep 2006|07:36pm]

geoffbrown
My partner, Travis, passed away just a couple of weeks ago from Sezary Syndrome--a rare form of lymphoma/leukemia. He spent the great majority of the past few months in the hospital for numerous things from blood transfusions to sepsis to pneumonia. Finally, he decided he'd had enough needles and I took him home on hospice care on August 24th. He only lived for 6 more days before he passed on the 30th. It is hard for me to admit and accept that his passing is a blessing, but truly it was. His quality of life had so deteriorated and he was ready. I knew his death was coming, but it is still hard for me to accept. He's always come home from previous hospitalizations relatively healthier. It became clear during the latest hospitalization that he was not getting better. He chose to die at home. I am so thankful for hospice and the compassionate and supportive care they provided for those 6 days. They were infinitely more compassionate and caring than the hospital and that is not meant as a criticism to hospitals, but only to demonstrate the intense attention and love that Travis received from the hospice workers in our home. I was so priveleged to support him and care for him through this illness and even more honored to be at his side during the last moments of his life. On August 30th, God did for Travis what no doctors, no family members, nor friends could do .... in an instant He healed Travis forever. --Goodbye for now my love! I will see you on the other side.
2 angels be supportive

xposted to cancersupport. [10 Aug 2006|11:49am]

phr00tsnax
[ mood | awake ]

I finish chemo on the 24th of August. After 6 months, I'm not even sure I want it to end. Seeing as I get sicker with each treatment and the knowledge that though it'll be done, I won't be doing anything to help anymore, is a little daunting. I'm sure those who've reached this step in their treatments can empathize.

But anyway, I'm almost done. Just 2 more (one this Friday and one on the 24th). I think I can do it. The cancer's pretty much gone anyway, so at this point the chemo is just a "making sure" approach.

Thanks to everyone who posted their stories and responded to mine (waaaay back at the beginning of the summer); I've been able to find some solace in this group that I couldn't find with anyone or anything else. Thanks. :)

4 angels be supportive

Ex-President Bush Pushes Cancer Research [08 Jul 2006|10:16pm]
mrsfruitcat
By JOHN HEILPRIN

WASHINGTON (AP) - Former President George H.W. Bush and his wife, Barbara, lost a child to cancer 53 years ago, but they're still fighting for cancer research and prevention.

"Maybe one of the reasons I am so devoted to the cancer cause is that because I know this is one fight we can win and will win. We must," Bush told an international cancer conference Saturday night. But, he added, "We simply can't expect to hold back the growing worldwide epidemic of cancer on less than a shoestring budget."

The Bush's second child, Robin, died of leukemia at age 3. Afterward, Barbara Bush overcame a serious bout of depression by throwing herself into volunteer work. She has said she might have become a nurse if she hadn't married Bush.

"Our interest in cancer began - as it does with most people drawn to this cause - with the loss of a loved one," she recalled. "When our doctor told us our little girl had leukemia, we were shocked. We had barely heard of the disease."

Research since then have raised the possibility that the cure rate for leukemia, once an almost universally fatal childhood cancer, could reach 90 percent soon, she said.

"The not so good news is that this rosy picture is not the case in the developing countries, where the vast majority of children with cancer are still dying," she said. "Despite all the great strides that have been made since Robin died, cancer is still the second highest cause of death in children between the ages of one to 14 worldwide."

But the former first lady sought to encourage the 2,000 scientists, doctors, researchers, health officials and public health care advocates at the conference.

"My pledge to you is that we will not consider our job done until we make surviving childhood cancer the rule, not the exception, in every corner of the world," she said, praising the advances in knowledge about cancer and the possibilities for treatment since Robin's death.

In 2005, cancer claimed 7.6 million lives - accounting for more than one in eight deaths worldwide.

Now in their early 80s, the Bushes are co-chairs of C-Change, a U.S.-based coalition of business, government and nonprofit leaders in cancer prevention. That and other causes have kept the former president busy since losing the White House to Bill Clinton in 1992 - an experience he said wasn't all bad.

"I think he did me a huge favor, incidentally," Bush added.

---

On the Net:

International Union Against Cancer: http://www.uicc.org
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Express Yourself thru ART ! [21 Jun 2006|08:21am]

ian_l
[ mood | Inspired ]

There's a "Lilly Oncology on Canvas" International Art Competition & Exhibition. Its for cancer patients, survivors, families, medical people, artists, amateur or professional. The aim is to visually express your cancer journey thru Art and what gave it meaning.

There are 6 categories:
Watercolor
Oil
Pastel
Photography
Acrylic
Other

More details here
http://www.lillyoncology.com/oncology_canvas/2006_dates.jsp?reqNavId=5.1.2

Hurry! Closing date is 31st July 2006.
There are prizes to be won.
The winning entries will be exhibited in London.
But hey.. you know what they all say
'The Journey is more important than the Destination.'
isn't it?!
;)

be supportive

hi [20 Jun 2006|09:45am]

ian_l
hi, I've been diagnosed with lymphoma stage 2A in Nov'05. went thru 6 cycles of CHOP but it didn't clean out the tumor in the chest area. My Oncologist said i would need a bone marrow transplant. Now I've just finished 3 cycles of RICE. They'll be collecting my stem cells next week and I'll be going thru the transplant in July.
Anyone got anything to share about the transplant?..

rgds
Ian L
12 angels be supportive

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